Facilitation to ensure coordinated supports for EB patients.
Genetic testing facilitation
At DEBRA Malaysia, we understand the critical importance of genetic testing for families affected by Epidermolysis Bullosa (EB). Genetic testing confirms the type of EB, enabling accurate disease progression predictions and tailored management plans.
It is also vital for family planning, helping families understand the genetic risks involved. We facilitate access to genetic testing for diagnosed children, connecting families with reputable testing centers and providing support throughout the process.
Our goal is to empower families with the knowledge and resources needed to manage EB effectively and plan for the future.
Welfare support facilitation
At DEBRA Malaysia, we understand the financial burden that comes with caring for a child with Epidermolysis Bullosa (EB). We offer facilitation services to connect families with relevant welfare support agencies.
Our aim is to ease the financial strain by helping families access the resources and assistance they need to provide the best care for their child.
Education support facilitation
At DEBRA Malaysia, we recognize the challenges that families and individuals with Epidermolysis Bullosa (EB) face in making education plans.
We provide comprehensive information and guidance on educational options, helping families make informed decisions. Additionally, we engage with schools to discuss the best supports for children with EB, emphasizing the importance of awareness and understanding among teachers and administrators.
Our goal is to ensure that children with EB receive the support they need to succeed in their educational journey.