Adam was born in February 2022 and was diagnosed with Epidermolysis Bullosa on his fifth day of life. Despite facing many challenges and critical phases, he is now growing up and aspires to live a normal life like other children.
Aina, 8 years old, was born with resessive dystrophic epidermolysis bullosa (RDEB).
Although she suffers, she is a fighter. Through her resilience, she has been able to prove that she is just like others.
Keep it up, girl ... our butterfly girl
James, 37 years old, had epidermolysis bullosa of the Kindler type. As an EB patient, he has had a difficult time in his life.
Apart from how he copes with his daily life and struggles, he has proven his strength and abilities.
his fragile skin does not stop him. Kickboxing for EB patients is a wonderful thing in life.
His performance inspires others ..
A brave 5 years old girl born with epidermolysis bullosa faces daily battles against painful, fragile skin. Despite numerous challenges, her resilience and courage have helped her survive and inspire others
Hadeef is the first child in his family, was diagnosed with Epidermolysis Bullosa. His parents are devoted to ensuring he has a quality life, filled with support and hope
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