Our priorities as patient support group.
Support to newly diagnose EB baby
The first 30 days are crucial in establishing a routine that ensures your baby's well-being. Our support includes advise on immediate care strategies, wound management and healthcare coordination.
We are here to help you every step of the way. Contact DEBRA Malaysia to get the support and information you need to ensure your baby is in good care from the very beginning. Together, we can provide the best start for your precious newborn.
Experience and knowledge sharing
At DEBRA Malaysia, we offer experience sharing sessions that bring together healthcare professionals and parents of children with Epidermolysis Bullosa (EB).
These sessions provide a platform for sharing knowledge and experiences in managing EB, including medical care, daily care techniques, emotional support, and social integration.
Our goal is to create a supportive community where families can connect, learn, and gain valuable insights to better care for their children.
Inter-Agency Coordination Support
At DEBRA Malaysia, we are dedicated to providing seamless and holistic care for Epidermolysis Bullosa (EB) patients through coordinated inter-agency support.
We assist families by facilitating collaboration between healthcare providers, welfare support agencies, educational institutions, and other relevant organizations. This comprehensive approach ensures that patients receive integrated care that addresses all aspects of their needs, from medical treatment and financial assistance to educational planning and social support.
Our commitment is to streamline these services, making it easier for families to navigate the complexities of managing EB and enhancing the overall quality of life for patients.